Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research

Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research book cover

Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research

Author(s): Institute of Medicine (Author), Board on Health Care Services (Author), Board on Health Sciences Policy (Author), Committee on Health Research and the Privacy of Health Information: The HIPAA Privacy Rule (Author), Lawrence O. Gostin (Editor), Laura A. Levit (Editor), Sharyl J. Nass (Editor)

  • Publisher: National Academies Press
  • Publication Date: February 24, 2009
  • Edition: 1st
  • Language: English
  • Print length: 334 pages
  • ISBN-10: 0309124999
  • ISBN-13: 9780309124997

Book Description

In the realm of health care, privacy protections are needed to preserve patients’ dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule.

In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine’s Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.

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