A Multidisciplinary Approach to Managing Ehlers-Danlos (Type III) – Hypermobility Syndrome
Author(s): Isobel Knight With contributions from Professor Howard Bird, Dr Alan Hakim, Rosemary Keer, Dr Andrew Lucas, Dr Jane Simmonds and John Wilks (Author)
Publisher: Singing Dragon
Publication Date: 28 April 2013
Edition: Illustrated
Language: English
Print length: 360 pages
ISBN-10: 1848190808
ISBN-13: 9781848190801
Book Description
Ehlers Danlos-Hypermobility Syndrome is a challenging condition which is often misunderstood and misdiagnosed. This book looks at how physiotherapy can provide effective and lasting relief for sufferers. The book explains how EDHS is diagnosed and how a physical assessment of the patient should be carried out. It shows how physiotherapy can systematically work through the body inside out to relieve symptoms commonly associated with EDHS such as muscle weakness, chronic pain, sleep disorders and irritable bowel syndrome (IBS). From the perspectives of physiotherapist and patient, the authors reflect on how and why they managed to achieve a vastly improved quality of life for Isobel. They highlight the importance of considering every aspect of a patient’s lifestyle, as well as the neurological elements and psychological impact of the condition, and how holistic treatments can be incorporated in the treatment plan. There is also guidance on how to monitor and chart symptoms, and set realistic goals in order to navigate a treatment program that works for the patient. This book will be essential reading for physiotherapists working with EDHS, and will be of interest to medical students, complementary therapists, psychologists, dance scientists, dancers and occupational therapists.
Editorial Reviews
Review
Isobel has once again written an incredibly readable account of her never ending journey dealing with (HMS) and the effect it has on her body and those of fellow sufferers. — Pilates with Julia blog and Pilates Tree Magazine, Julia Crossman
This second book by Isobel Knight on Ehlers-Danlos Syndrome (Type III) is targeted at medical professionals and offers a unique combination of the latest research on the subject plus her own experiences as a sufferer of one the hypermobility syndromes (Type III). Despite the target audience being medical professionals the book will no doubt be read by the vast numbers of people suffering from a hypermobility syndrome who hunger for information. One of the downfalls of having a multi-systemic condition is that often professionals from differing disciplines do not communicate with each other – this book pulls together all of the information available which makes it a must read for all who work with people with Ehlers-Danlos Type III. — Donna Wicks, Senior Medical Liaison Officer, The Hypermobility Syndrome Association
This unique book is recommended for health professionals wishing to gain a lived experience perspective of JHS/EDS III. The author has invested considerable time and energy researching, reflecting and understanding the complexities of this condition. The result is a culmination of an autoethnography with clinical explanations. — Carol J. Clark, MCSP, MSc, PhD, Lecturer in Physiotherapy, Bournemouth University
A fantastic read for anyone living with Ehlers-Danlos Syndrome, especially the Hypermobility type. Isobel’s personal account of day-to-day life with the condition provides detailed descriptions and insights on how to cope, backed up by good medical information, I highly recommend. — Lara Bloom, Development Manager, EDS UK
Book Description
Essential reading for professionals working with EDSIII including medical professionals, physiotherapists, occupational therapists, psychologists, and complementary therapists
About the Author
Isobel Knight is a writer, researcher and periodic lecturer on Ehlers-Danlos (Type III) Hypermobility Syndrome. Isobel is also a practising Bowen Therapist and lives in South London.
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